by Pearls of Wisdom | Mar 19, 2019 | Sickle Cell Anemia
Julia Aruya is a 37-year-old sickle cell disease (SCD) patient from Lagos, Nigeria. Being the only one of four children to be born with SCD, her discomfort was intensified when people asked how she felt about being the only child with this terrible disease in...
by Pearls of Wisdom | Mar 18, 2019 | Sickle Cell Anemia
Debbie Thomas’ letter to the Sickle Cell Information Center at Emory Libraries & Information Technology reveals some key success factors in the lives of sickle cell disease (SCD) patients that are unfortunately not as common in that community as they should...
by Pearls of Wisdom | Mar 16, 2019 | Sickle Cell Anemia
In December, 2017, 27-year-old Jennelle Stephenson was one of a small group of patients at the National Institute of Health (NIH) to receive altered DNA to cure her sickle cell anemia. She received a clear liquid containing her stem cells that have been...
by Pearls of Wisdom | Mar 15, 2019 | Sickle Cell Anemia
The use of hydroxyurea in African children with sickle cell disease is resulting in a number of very positive, noteworthy benefits. Amongst them are significantly reduced pain crises and reduced risk of malaria infection, the reason for the latter being largely...
by Pearls of Wisdom | Mar 14, 2019 | Sickle Cell Anemia
Partial-match transplants are offering sickle cell disease patients new hope for significantly improved health and possibly even a cure. The possibilities these transplants present illustrated by the three scenarios below, once again highlight the important...
by Pearls of Wisdom | Mar 7, 2019 | Sickle Cell Anemia
The story of Revée Agyepong’s victory over sickle cell anemia is very inspiring indeed. The 26-year-old from Edmonton, is among the first adults in Canada to be cured of the disease through stem cell transplant made possible by her sister’s loving support. Ever...